Meet Avery Kay- our determined, courageous, angel who cares more about those in her life than the burden she was born with when she entered this world. Avery was born with a very rare progressive genetic disease called Pompe which currently has no cure. Pompe effects and weakens the muscles throughout the body. She currently requires bi-weekly enzyme replacement infusions, immune suppression treatments and extensive physical, occupational, and speech therapy. Even with the muscular challenges she faces her favorite activity is singing and dancing her little heart out at the dance studio and in the living room of anyone’s home. She may not have the endurance or physical strength that most 5 year girls do but nothing keeps her down for very long and her determination to never give up drives her to live life like we all should. She lives everyday to it’s fullest and has taught those around her to do the same. She loves playing with her big sissy Mya, her family, friends, school, dance, and dressing up like the princess she is.
Thank you, Love That Photo, for these priceless images.